celebrities with bicuspid aortic valve

Body contact sports may pose some danger to athlete patients who take blood thinners. March 15, 2023. Our only tool to keep track of aortic enlargement is repeated measurements with CT or echo. I had multiple re-hospitalizations but seemed to recover. I was concerned about his cough last weekend so I was assessing his lungs with my stethoscope when I heard a very pronounced diastolic murmur at his 3rd ICS. I have been given no restriction to date in any physical exercise as my valve is in decent condition. Athletes in this circumstance should collect opinions from their doctor(s) and make very careful considerations before returning to exercise. I too am looking for information on effects to performance since I am a Masters racing cyclist with 25 years of racing/riding long events. Could he be over-cautious? That means it is a congenital heart defect. Seven months ago I had emergency AVR due to a BAV that was severely compromised by endocarditis. Hi Sean, This can cause the valve to malfunction and prevent blood from flowing correctly from the . Sadly, no crystal ball is available. This has been true as long as I can remember in all sports I seem to have to put a lot more in to get the same out as others. I cant think like a nurse where hey is concerned. I feel like 95% of other people my doc sees are just happy to get back to their normal life which doesnt include pushing their bodies to extreme limits. In your case, though, the infection might well influence the healing process. Now Id like to know your opinion about physical performance, before and after. An abnormal aortic valve develops during the early weeks of pregnancy, when the baby's heart is developing. The ST junction and ascending aorta are mildly dilated max 35mm. Perhaps you could organize such a visit for a 2nd opinion regarding safe levels of exercise? Sheer brutality and trauma caused Myasthenia Gravis. Or is the real risk related to further deterioration of the heart in the longer term that would be picked up by 6 monthly monitoring, which may indicate the need for surgery but not an immediate risk of dying suddenly? Elite triathletes and heart problems Then, a Dacron fabric tube can be used to reconstruct the aorta, in a so-called valve-sparing aortic root replacement. However, there are few reports about the safety and efficacy of TAVI in type 0 BAV. His exercise stress test on 8/5/16 was fine. They may also disrupt the normal flow of blood through the heart. Is the biggest risk (from numbness) a over-calcified valve which would cause lack of blood flow? Patients with BAV who have a normal size aorta, with no stenosis or regurgitation of the aortic valve, can participate in sports without restriction. Doctors at the Frankel Cardiovascular Center's Comprehensive Aortic Program have . Regards In addition to this public search, we scanned our proprietary research database of over 1 million sources and were unable to find any specific research reports that address your goals. My daughter (16 y/o) has a St Jude mechanical mitral valve (adult size valve even though she has had it for 7 years). Its conceivable that an echocardiogram a week afterwards could be abnormal simply because of the race. Is this a normal side effect of the heart condition or not? This also assumes that there are no other cardiac issues or medical problems to consider. It will also be necessary to keep a close eye on the size of the aorta over time, using echocardiography and CT. And he never had any symptoms and played competitive soccer since he was 6. He sees his cardiologist every year. Surgeon Q&A: What is TAVR Valve-in-Valve? On March 30, 2018, we learned that Arnold Schwarzengger required a second heart surgery. I would not want yo distinguish between the various forms of static exercise that you mention. You might be wondering, with no disrespect to the great people of Cleveland, why Schwarzenegger, who surely has access to the finest hospitals under the sun, would choose to have surgery there. However, his ascending aorta has been enlarging: 11/27/13 31 mm (echo), 6/10/15 39 mm (echo), 7/8/16 41 mm MRI). Is it like keyhole surgery? Great article! The fusion (sticking together) of the valve leaflets causes abnormal valve opening and closing. And, if so, how did things go? "I had been doing some work around the house working with a heavy ladder, he told PEOPLE of his activity in the days leading up to his heart attack. However, some people are born with an aortic valve with only two leaflets, known as a bicuspid aortic valve. Doing nothing wont be great for my heart and wont extend my life neither probably.. Heart failure, where the heart weakens from working too hard to pump blood. Bicuspid Aortic Valve: Symptoms, Diagnosis & Treatment, Biological Tissue Valves: Pig, Cow, Horse & Human, The Patient's Guide To Heart Valve Surgery. I do think that aspects of the martial arts are strength-related. All severe aortic stenosis patients who are experiencing symptoms should ask for a TAVR evaluation. The notion is to reduce the number of cycles of heart beat x high blood pressure. And I dont know if my Cardiologist follows the same guidlines, but I dont think hes under the impression that Im any kind of athlete either. If so, youre far from alone. I was also advised that it is really the static weight-lifting that could pose a problem. It has served me well enabling me to live the vigorous, full, complete life you are all so familiar with. Yes, there are certainly individuals with BAV who go a lifetime without needing valve replacement or aortic surgery. Hi, my name is Hector and I am 34 years old. View HelpingHeartsCharitys profile on Facebook, View @HelpingHeartsMDs profile on Twitter, View HelpingHeartsCharityMDs profile on Instagram. My cardiologist has advised me to avoid high impact activities such as weight lifting and endurance training. My resting pulse is 55 and BP 115/82. Post 2 years and Ive yet to get back to my high level of racing fitness and wanted to see what should be expected. If reoperation is needed in your case, this would be something to discuss. Aortic dilatation is a common feature of BAV with a prevalence ranging from 20 to 84% , due to differences in assessment techniques, study population, aortic size thresholds, and heterogeneous nature of the . 2. Left ventricle (LV diastolic diameter 54mm|58mm, LV diastolic volume 142ml|167ml, LV systolic volume 39ml|57ml, Ejection fraction 72%|65%); Bicuspid aortic valve: A bicuspid aortic valve only has two leaflets, increasing the risk of circulatory problems and heart conditions. "Until then, stay close.. This is the way I can help. Ive got my results from my recent echo and a lot of normals on there but main things were regurgitation and stenosis were mild with the aorta measuring about 33mm. As of Monday, my BP at the echo appointment read 115/66. My son is a very active and healthy 14 year old. Film star, former California governor, and seven time winner of the Mr. Olympia title Arnold Schwarzenegger published positive images to his social media platforms on Friday as he recovered from heart surgery. Stories of Bicuspid Aortic Valve. Athletes with BAV who have no stenosis or regurgitation of the aortic valve AND have no enlargement of the nearby aorta may participate fully in their sports. I would really like to know if I can (or shouldnt) push myself as hard as I used to. (Have you heard of the studies by Dr. Again, thank you and bless you for taking the time to talk with us here! Throughout the years he has played football and basketball. Yes, there are certainly patients with BAV who never need operation. This year (her junior year) her Cardio doc is saying that she cant in good conscious clear her for basketball (the sport my daughter LOVES). I feel fantastic and have already been walking the streets of Cleveland enjoying your amazing statues. Jeff/Doc, You can see my post above, from 26th of april. Any person in my family there was no problem with the heart. Males are affected 3:1 compared to females. Will I need surgery? Patients need operation if there is severe stenosis or regurgitation of the aortic valve.or if the nearby aorta becomes moderately enlarged. From your standpoint (and your sons), it will be important to have that dialog to sort out whats safe. What advise can you give to someone in my position? I have been doing as much research as possible on what are the advantages/disadvantages of each replacement. I am now in no mans land of not needing immediate surgery (per the pressure number in left ventricle) and not being able to run more than 30 min. He isnt interested in anything else. There are certainly individuals with BAV who never have trouble down the line. If so, how quickly? Functionally bicuspid aortic valve (type 1). Aortic replacement. And its always valuable to frame up discussion in terms of how much risk is acceptable. SPORTS FIGURES/ATHLETES. Thank you for your assistance in this matter. I played competitive amateur football (soccer) on Saturday and Sunday from age 16. I believe that many Cardiologist are not as experienced regarding how to advise high-performing athletes (even older ones like us). Enlarged ascending aorta 42-43 mm My surgeon basically said, Lets get you back to living your life. Cardiologists always say take it easy. I mean, when competing, my average heart rate is close to 159 and my max HR is around 170. Im not sure how you should best sort out the differing recommendations from your doctors. Zdenko . But Bob, you confirm that it does for you; and unfortunately I see same for me although 25 years younger. Good to hear that youre making a good recovery from your second operation. I agree that your doctor(s) are in the best position to offer advice regarding safe exercise based upon your particular circumstances. This was 7 months ago. Thanks so much for all this info! ODonnell, now 54, said her heart attack began after she helped an enormous woman struggling to get out of her car in a parking lot. Im 31 and 1 years ago i found im BAV with modrate AI. Anyway, it has slowed to 1 mm per year, and, via email, Dr. Dietz has suggested we may consider a switch to 300 mg Libersartan? Other heart parameters are very good (no bigger chamber or aorta). Thanks for sharing your sons story. I too would be interested in talking off-line about what I have experienced or finding docs who have studied more extensively at fine-tuning high performance engines. While I do not work out regularly, my job as a construction worker is somewhat strenuous. Im in Philly today but Im from Central NY. My name became public 25 years ago this week. I had a David Tirone Operation a couple of weeks ago to repair a BAV with aortic dilatation (49mm), and a small leakage. I am mostly a runner, 4 times a week, with 10 21 km races. i.e. Adam Pick is a heart valve patient and author of The Patient's Guide To Heart Valve Surgery. Index to blog posts and online articles, Filed Under: Heart problems Tagged With: aorta, aortic aneurysm, arotic valve, bicuspid aortic valve, congenital heart disease, heart, heart surgery. Most patients spend about a week in the hospital after operation and then are able to go home. They all underwent aortic valve replacement. Both are important in deciding if and when operation is needed. Beta blockers are frequently prescribed in the circumstance you describe, but in truth we dont know if they will be effective in delaying surgery for any given patient. Have you heard about the PEARS procedure? Cardiac outcomes in a contemporary population of adults with bicuspid aortic valve have not been systematically determined.Objective To determine the frequency and predictors of cardiac outcomes in a. Star Jones. I have a St. Judes Bovine valve now. I was training for 11th marathon at the time (over the past 13 years). Ive starting going to the gym again and doing cardio with weights to tone up. Arnold Schwarzenegger Helped Greta Thunberg Get a Tesla, Where to Watch the Biggest 2023 Awards Contenders. Hi, Further to this most recent discussion point I was advised that isometric exercises, such as planks and other pilates type activities, as I understand them, are perfectly safe with BAV. And lastly, the degree of healing in the remaining (unoperated) aorta probably has a big impact on the potential risk. We just dont know. Its also clear-cut that patients with significant enlargement of the aorta to greater than 5.0 cm need operation for replacement of the aorta. What should i do? Sometimes patients with mechanical aortic valves report that they lose a bit of their top-end athletic performance. Log in, September 26, 2013 By Larry Creswell, MD 155 Comments. He also has minimal leakage at the valve aorta. His doctor said his heart look very healthy and no other issues. TAVR is a relTively new technology where a new heart valve, shrunk onto a catheter, can be threaded through the bloodstream (usually through a leg artery) to where your current valve sits.and then expanded inside the current valve, pushing it aside. To me, you know your own body and what you can manage whilst straining as little as possible. I have BAV with an ascended aorta and heart murmur. Compared to our own native valve, all of the available prosthetic substitutes have a small degree of aortic stenosis built in, unfortunately. Ive been affected by heart disease practically my whole life, she said. I can tell my story. Can you tell me what is to much, are push ups or pull ups heavy lifting, is 3 time per week 5 km running with 10-12 km/h pace to much? There, they detected I had a bicuspid aortic valve." This meant the valve which controls the flow of blood from the heart's left-ventricle chamber to the main artery had only two flaps instead . My daughter has played two years of varsity basketball already. My 25 year old son was just diagnosed with BAV AR (3+). The pitfall, though, is that our native aortic valve is itself very efficient. My Dr. gave me the all clear to go back to my exercise routines. The surgeon I used told me that he had performed keyhole surgery once but wasnt sure if it would be of much benefit to me. For example, are there data that shows what happens to aortic diameters once sports have been stopped? Always best to heed the advice of your doctor(s) who will be in the best position to offer advice about safe forms of exercise. However, my most recent scan in October revealed all Stenosis and LV thickening had gone completely (Doctor said this was a very positive result perhaps due to excercise and medication). I went through the regiment of meds that are prescribed post AFIB. Thank you for your time Dr.! Aortic stenosis and bicuspid aortic valve (BAV) Unanswered questions include: Can a bioprosthetic valve wear out more quickly than expected? Obviously, mild to moderate would be somewhere in between. There is a readable section related to BAV. Regards This is an area where second opinions may be helpful in sorting out whats safe. Your responses mean a lot to myself and no doubt others on this forum. There are a multitude of patient-specific circumstances that must be considered when deciding if and when operation is needed. We want our patients to know that whatever the level of care they need, our team will design and implement the health plan that works best for them, Starnes said. Many patients with surgery for BAV, even if it involves aortic root replacement, lead rather normal lives afterwards. In patients needing valve replacement because of stenosis or regurgitation, the aorta should be repaired or replaced if the aortic diameter exceeds 4.5 cm. His doctor did not restrict him, but suggested that it may be time to give up the high-level play due to its high intensity training aspect (based on the I met an old guy once after a run and he described me very well his running experience; he said when I accelerate, Im the only one to know. Common symptoms include chest pain, shortness of breath, dizziness and fainting. Bicuspid aortic valve (BAV) and congenital aortic stenosis are two types of heart defects that may be present at birth. "Heart disease is the number one killer of all Americans, the number one killer of African-Americans and the number one killer of women, so I shouldve been put on notice since Im three-for-three. Apparently I also have a mildly enlarged IVC as well as mildly enlarged left and right atria. 5 months ago was diagnosed with severe AR and 5 cm long aneurism (root 3.0 cm, sinusi valsave 4.3cm, ST 3.6cm, ascending aorta 3.6cm) on regular yearly checkout, with no syptoms. At issue are the potential long-term effects of repeated episodes of high heart rate and high blood pressure that accompany intense exercise. Jones' goal with the AHA is to help women "actively put themselves on the track to heart health." Im 33 and I do jiu-jitsu. Over time, these patients need to be monitored for continued proper function of both the pulmonary valve (that was borrowed) and the new substitute for the pulmonary valve. With the blood thinning needed for a mechanical valve, serious bleeding may occur with injuries. Last week, the CBS This Morning anchor announced via his co-anchors Gayle King and Norah ODonnell that he would be taking a break from the show to undergo heart surgery. First, a disclaimer.My practice is devoted to adult patients. Its probably not possible to have too much information as you think about your situation. I do not feel any of the effect of my condition when I run or workout. So it's got the Rock and Roll Hall of fame and great doctors. You are a very good man. Your email address will not be published. The doctor looked at the results and told me to limit physical activity (running), because it can lead to heart failure in future. Interestingly, bicuspid valves are one of the most common forms of heart valve disease. Thank you for what you do and for your responsiveness. Normal function of cardiac valves The congenital bicuspid aortic valve (BAV) condition is a valvulo-aortopathy with substantial heterogeneity in its clinical expressions, associated disorders, complications, and prognosis. Bicuspid aortic valve (BAV) disease is the most common congenital heart defect, as it affects 1.3% of the adult general population . Since you have the ready info about your aortic sizes over time, I will guess that you have a doctor or cardiologist that you are working with. Thanks for sharing your experience, Randy. 2) According to your explanation I rather not do cycling sports, but can I have low intensity sport like cycling or swimming twice a week for 90 minutes each, or 3 times for 60 minutes? 3 In the most common type (type 1), there is a fusion line between the left and right coronary cusps, which extends a variable distance from the commissure (the point of attachment of the . Push for earlier date? Do you think the weights Im doing at the moment seem OK with those results ? Did you run? I am concerned about removing the coronary arteries and re attaching them again etc. Thanks for the infoI really appreciate what you,have to say. Ive done the Philly a Marathon a coup,e times and know that its a terrific event. Negative Stress Echocardiography I would just like to share my experience of having a Aortic Valve replacement. ), What do you think? The plasma volume and the heart rate increase, while the systemic vascular resistance decreases throughout the first trimester and plateau about halfway through pregnancy [10]. I would encourage you to have further discussion with your doctor(s) about EXACTLY what forms of exercise are safe. 2. While it was anticipated that a minimally invasive, transcather device would be used during the procedure, a surgical valve was ultimately used during an open-heart procedure using a median sternotomy. The various artificial valves are a little bit less efficient that the valve were born with. Jeff. She's currently spreading the word about the AHA's partnership with CVS' MinuteClinics for free heart health screenings every Thursday in February. How long does it take for the homograft to completely heal? From the outside, these people look healthy, and some are, while others are not. Im 37 years old male, live in Croatia, 191 cm, 94 kg, very athletic, practicing various sports my whole lifetime. First, Id encourage you to follow your doctors advice. Hannah Yona Fraint, M.D. I get the fact that lifting excessively can cause a spike in blood pressure, but only under certain conditions (i.e. Im 32 years old and didnt expect at all that my aorta would dilate. The singer co-founded the Womens Heart Alliance, which works to raise awareness and funds research to fight womens heart disease. Options for operation I have also had a stress test, which showed no issues at all. Thanks for sharing an update. You should discuss this possibility with your doctor(s). and my valve is working quite well (mild aortic regurgitation). The average lifespan for a cow valve or pig valve is about 10 to 15 years, according to the Cleveland Clinic. I have an OnX mechanical valve. No LA, RA, RV, chamber dilation Im followed by a cardiologist who only says not too much weight lifting.. For example, his spurt in enlargement happens to coincide with his spurt in growth. Any guidelines? She partnered with the American Heart Association to encourage others to get CPR training that could potentially be life-saving. It may cope adequately for a few years if the person leads a sedentary life, but the longer crucial surgery is delayed, the more damage there will be to . Im 33 from UK and have known about my BAV since I was around 18. Last i took him for the check up and everything is still the same but they said now the guidelines has changed and he is on the borderline of Mild to Moderate which will move him to restricted activities. That is except for the last two months hes had several illnesses ( influenza, bronchitis, URI). I have appointment with a cardiologist on Friday but in the meantime i would like to know weather in case of surgery a replacement of the valve is definitely necessary or my condition still allows some options for a surgery without replacement. I am 38 and very active (running, cycling, strength training etc). On Ocotber 23, 2020, we learned that Arnold Schwarzenegger had a third heart valve procedure, a re-replacement of his aortic valve replacement. 2020 Update: Arnold Gets An Aortic Valve Re-Replacement! Well, as it happens, the Cleveland Clinic has been recently rated the top heart hospital in the nation, and the number two hospital overall. I had a good childhood being very active in sports and physical activity, I had just had to watch out for contact due to warfarin. Also suggested taking low dose of beta-blockers although I have been told the effectiveness has not been proven. I am young with many years ahead, I dont want to accept this just yet when I know theyre is possibilty of repair. He is football player and he has training 5 times per week (for about 1,5 hours each). But, three heart valve surgeries! Thoracic aortic aneurysm, an abnormal bulge in the part of the aorta located in the . On the bright side, there is ample evidence that, in the modern era, life-expectancy is not shortened for individuals with BAV compared to the general population. That post is a starting point for todays discussion. Call 911. Its awesome to see you are diligent at responding to people also. Another possibility that you havent mentioned deserves some discussion with your sons doctor(s) or surgeon. I ran a 1/2 marathon 4 months after my surgery and have been since training for the Philly FULL marathon, which is tomorrow. I appreciate your input. (bicuspid aortic valve), singer Bret Michaels (atrial septal defect), and even 'Survivor' contestant Whitney Duncan (ASD). No changes in regurgitation status (aortic regurgitation LVOT 19%); A bicuspid aortic valve (BAV) is an aortic valve that has only two leaflets instead of three. Hi Dr Creswell, So unfortunately it sounds like i am part of that grey area. Im not sure how those two problems would be related. I agree that its somewhat surprising that more detailed information isnt available. Like I said, peoples experiences are all different. Current guidelines suggest no restrictions on activity for athletes with BAV who have no stenosis/regurgitation and who have a normal sized aorta. Thank you for your ideas and I apologize for my gramma errors (English is not my first language). Also I seemed to get quite sweaty the following hours after a hard training session. So you know, this is not uncommon for heart valve surgery patients. Running it is important for me but if it has a problematic effect , I would opt for power walking Ten years ago (2006), doctors said that there was a worsening of the BAV but still no need to have Aortic replacement. My son is 15 and has grown about 4-6 inches in the last year. Over the past 3 years, my endurance has declined significantly, and now I cannot run a lap on the treadmill without some walking; however, my numbers from the semi-annual utrasound have not changed much. His story is typical. For some reason I did not receive a notification of your reply, so apologies that I havent thanked you before. Thanks! As I mentioned in previous comment my recovery is going great. Thats important to keep in mind. Based on the information Ive provided, I would greatly appreciate your advice and opinion on the matter. Palace Insiders Say Prince William Is Already Furious About Prince Harrys Memoir Leaks, Prince Harry alleges Prince William attacked him over Meghan Markle in a new excerpt from, Scene Stealer: The True Lies of Elisabeth Finch, Part 1, Rupert Murdoch Knees Trump in the Balls While Hes Doubled Over Coughing Up Blood, By BG017/Bauer-Griffin/GC Images/Getty Images. Aortic valve repair and aortic valve replacement are done to treat aortic valve disease. Have completed an excercise stress test and signed off as ok on reaching level 13. Thank you for your time. Most patients (like me), however, start to experience problems during their 30s, 40s, and 50s. that suffer from heart valve disease along with a link to the reference story about heart valve disease and their Twitter handle to tweet on and promote the Valve Disease Day. Your sons doctors are undoubtedly experts at pediatric patients.

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